The description of studies from different online catalogues was reviewed and compared. The catalogues assessed comprised BBMRI-ERIC, BBMRI-LPC, Birthcohorts.net, InterConnect, LifeCycle, LifeLines, Maelstrom Research and RD-Connect. The assessment was done separately by the RI-MUHC and UMGC teams, and the results from both teams were compared and discussed. The conclusion was that few description fields were common across all the catalogues.
Following the comparison of catalogues, a proposal of content to be used to build the EUCAN-Connect catalogue data model was created. Information was selected according to the scientific relevance and usefulness to identify potential cohorts of interest. The suggested catalogue content is divided in 5 modules, the fields in the first module being mandatory for all studies to be included in EUCAN-Connect. Each successive module builds on the previous one while adding more information. The proposal will be reviewed by the EUCAN community during a EUCAN-Connect AGM session in September 2019.
